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Old 08-13-2015, 06:12 AM   #1
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Doctors are telling me not to treat my son when he has hypoglycemia.

My son has been having low blood sugar levels with symptoms and even passed out a couple of times when it has been 42. The Doctors I have seen have said that I shouldn't worry about it because he isn't a diabetic or on any medicine to cause low blood sugar and that his body will metabolize his muscle to keep him from going too low. My son is 10 and only weighs 62 lbs already so he doesn't have much left to metabolize. Am I right that this is not good advice? Two different Docs have told me to just be thankful he doesn't have high blood sugar or obesity. All of the articles I have read say to treat if it gets below 70 and every time I treat his lows he gets functional again. I cannot believe this advice and its made it impossible to get him help.
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Old 08-13-2015, 09:51 AM   #2
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Is this a GP or a Pediatrician?
IMO bad advice.
Did they give you any reason why it would be dipping so low? Medications or something?
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Old 08-13-2015, 10:39 AM   #3
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IMO if he is passing out at the age of 10 it is a problem that should be treated - he could seriously hurt himself passing out in certain situations.

is this a pediatric specialist? or just a regular pediatrician? sounds like you need to see a pedi endocrinologist - i would make an appt myself if your insurance allows it.

if you are not happy with what they are saying go to other doctors multiple if necessary.

for over a year my son was throwing up for 8 hours a day and gastroenterolgists finally said they could not give a diagnosis or a way to stop it - finally had to go to a different dr out of network and she nailed his problem at the first appt - this after seeing multiple different drs in network for a year. so keep looking at other dr's until you are satisfied.
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Old 08-13-2015, 01:57 PM   #4
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One urgent care Doctor and one pediatrician at Georgia university hospital. The Ga one said he wants him to see a neurologist for the passing out which is at least something but I just can't believe the advice on ignoring the low blood sugars and not even looking into it since it correlates with his symptoms and is always low. I will see the neurologist and also continue to treat his lows but I was told the Ga hospital is the best place to go so I am not sure where to go now. Need referrals for specialist so maybe the neurologist will refer to endocrinologist.
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Old 08-13-2015, 02:21 PM   #5
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IMO if he is passing out at the age of 10 it is a problem that should be treated - he could seriously hurt himself passing out in certain situations.

is this a pediatric specialist? or just a regular pediatrician? sounds like you need to see a pedi endocrinologist - i would make an appt myself if your insurance allows it.

if you are not happy with what they are saying go to other doctors multiple if necessary.

for over a year my son was throwing up for 8 hours a day and gastroenterolgists finally said they could not give a diagnosis or a way to stop it - finally had to go to a different dr out of network and she nailed his problem at the first appt - this after seeing multiple different drs in network for a year. so keep looking at other dr's until you are satisfied.
Geez, what was it?


Good luck, MSN08, Mothers usually know best!
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Old 08-14-2015, 08:17 AM   #6
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Geez, what was it?


Good luck, MSN08, Mothers usually know best!
the new dr did a non invasive test called an egg electrogastrogram!?! and found it was a nerve that was either being over or under stimulated and prescribed a 1/2 mg of clonazaepam and an antihistamine that targets the liver of 1 mililiter every night and he is good all this after multiple invasive procedures including endoscopies with biopsies etc.

MSN08 - if you are not happy with his status keep going to different doctors do what is necessary for your son - you are his best advocate not necessarily the dr's . it make take a year or more but keep going until you get answers- u go mom
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Old 08-14-2015, 01:40 PM   #7
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I used to get episodes of hypoglycemia, but I never passed out...I would get very shaky, break out in a cold sweat, and I'd be woozy. It always happened a couple of hours after I ate a plain bagel for lunch. I finally put 2+2 together and realized it was from the pure carb lunch I was eating. Apparently, my BS would spike immediately after eating the bagel, and then it would drop too low. So, I switched to eating lower sugar yogurt and the episodes stopped. In the meantime, I think you should make sure your son does not eat high carb meals. He should eat every 3-4 hours to keep his BS stable and from dropping too low, and he should not eat only carbs at one time, like bread or cookies (that's what I was doing). I had a friend who used to pass out and the doctor finally found out that her heart rate was dropping too low, so the doctor prescribed a beta blocker to keep her heart rate steady. She also consulted with a neurologist, but it was the cardiologist who is treating her for her heart rate. People can pass out from very low BS, so I'm not so sure a neurologist is the right doctor. I think doctors automatically recommend a specialist based on the symptom which in your son's case is passing out. But if it's from low BS, it's an endocrine issue. I'm sorry you and your son are going through this. I feel your first step is to monitor his diet carefully, make sure each meal includes proteins and fats and complex carbs. He should stay away from processed foods and simple carbs which can raise BS rapidly and causes spikes and sudden drops in BS. Of course I am not a doctor, but this was my experience.
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Old 08-16-2015, 07:49 AM   #8
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I used to get episodes of hypoglycemia, but I never passed out...I would get very shaky, break out in a cold sweat, and I'd be woozy. It always happened a couple of hours after I ate a plain bagel for lunch. I finally put 2+2 together and realized it was from the pure carb lunch I was eating. Apparently, my BS would spike immediately after eating the bagel, and then it would drop too low. So, I switched to eating lower sugar yogurt and the episodes stopped. In the meantime, I think you should make sure your son does not eat high carb meals. He should eat every 3-4 hours to keep his BS stable and from dropping too low, and he should not eat only carbs at one time, like bread or cookies (that's what I was doing). I had a friend who used to pass out and the doctor finally found out that her heart rate was dropping too low, so the doctor prescribed a beta blocker to keep her heart rate steady. She also consulted with a neurologist, but it was the cardiologist who is treating her for her heart rate. People can pass out from very low BS, so I'm not so sure a neurologist is the right doctor. I think doctors automatically recommend a specialist based on the symptom which in your son's case is passing out. But if it's from low BS, it's an endocrine issue. I'm sorry you and your son are going through this. I feel your first step is to monitor his diet carefully, make sure each meal includes proteins and fats and complex carbs. He should stay away from processed foods and simple carbs which can raise BS rapidly and causes spikes and sudden drops in BS. Of course I am not a doctor, but this was my experience.
I have found the only way to keep him functioning properly is carbs all day long, I hate it because I know it's bad for him in the long run but it is all that works best. I have been trying to find him help for 7 years the way it seems is I'm out of luck unless he develops diabetes then doctors will do something thank you all.
Jedswife I am glad you found help for your son. I will continue trying to get my son help as well.
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Old 08-16-2015, 07:52 AM   #9
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I have POTS a form of dysautonomia that causes blood pressure and heart rate changes that can lead to passing out. I have wondered if my son needs to be checked for that but it took me six years for a doctor to find that after countless different doctors and one finally figured it out.
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Old 08-16-2015, 09:10 AM   #10
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Are you checking his blood sugar with a monitor? I think I would keep a record and keep looking for a doctor with some sense. I would think a pediatric endocrinologist would be who to see. They need to find the underlying cause.

Has he been checked for what you have? Is there a blood test or something that can diagnos it? I think I would just tell the doctor to check it.
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Old 08-16-2015, 04:06 PM   #11
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Are you checking his blood sugar with a monitor? I think I would keep a record and keep looking for a doctor with some sense. I would think a pediatric endocrinologist would be who to see. They need to find the underlying cause.

Has he been checked for what you have? Is there a blood test or something that can diagnos it? I think I would just tell the doctor to check it.
I have been checking it with a glucometer. He will go to bed with a 104 and wake up with it in the 40's he gets very cold and sweaty in the middle of the night so I am certain his bs is low through the night as well. I wanted him to see an endocrinologist but I need a referral from a pediatrician and so far none think he should see one but instead they want him to see a neurologist so I will take him to see the neuro and hopefully he will see that he needs an endocrine doctor instead.
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Old 08-16-2015, 06:53 PM   #12
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I can't believe those doctors! A child whose BS drops to 40 clearly needs to see an endocrinologist. They just dismiss that his BS drops so low? Amazing!!!
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Old 08-17-2015, 07:28 AM   #13
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I can't believe those doctors! A child whose BS drops to 40 clearly needs to see an endocrinologist. They just dismiss that his BS drops so low? Amazing!!!
Yes they told me "that's not low enough to cause him to pass out, they have diabetic patients who go as low at 20's and my son's body will utilize his muscles to keep him from dropping to a dangerous level".
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Old 08-17-2015, 01:47 PM   #14
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The key word here is "diabetic". Something is going on with your son's BS which may be a precursor to diabetes. And just because your meter says 40 does not necessarily mean it's 40. Meters are notoriously inaccurate. I do hope you can get him the help he needs.
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Old 09-18-2015, 05:43 AM   #15
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just checking in to see how things are going for you and your son

Hopefully you are getting some answers!
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Old 09-20-2015, 11:13 AM   #16
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just checking in to see how things are going for you and your son

Hopefully you are getting some answers!
I have him on a lowcarb grain free diet and he is doing much better, but I still don't have any answers. I am just doing my best. He says he feels good so hopefully this is enough since I am on my own with his care.
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Old 09-20-2015, 06:35 PM   #17
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I know what you mean. We have to take things into our own hands and hope for the best. I see you are doing gf whole foods. That's what we are doing, while trying to keep the starches down. I will do roasted potatoes or something occasionally though to keep dh happy I make the girls lunches for school, and so far they are happy and their friends want what they have which is always a plus! There are tons of good ideas (I cant handle all the frufru type stuff) but I have noticed they do better on the whole foods eating plan. They come home ready for snack but at least they are not STARVING!
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Old 09-26-2015, 06:52 PM   #18
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My health as a child was dreadful, in part because I was hypoglycemic. Most of the other problems I had were due to diet---not necessarily only junk food, just foods I shouldn't have been eating---but the hypoglycemia wasn't. It was finally explained to me a few years ago as an inborn error of metabolism.

Anyway, low carb definitely takes care of my hypoglycemia. And one trick I learned years ago is to always always have protein and fat late at night---preferably right before falling asleep.

I'm in my early 60's now, meaning I've had problems with hypoglycemia for almost 60 years, and I'm still not diabetic, if that's any reassurance for you. I do still become hypoglycemia, but almost always because I do stupid things, like not eat breakfast, etc.
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Old 09-28-2015, 01:30 PM   #19
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My health as a child was dreadful, in part because I was hypoglycemic. Most of the other problems I had were due to diet---not necessarily only junk food, just foods I shouldn't have been eating---but the hypoglycemia wasn't. It was finally explained to me a few years ago as an inborn error of metabolism.

Anyway, low carb definitely takes care of my hypoglycemia. And one trick I learned years ago is to always always have protein and fat late at night---preferably right before falling asleep.

I'm in my early 60's now, meaning I've had problems with hypoglycemia for almost 60 years, and I'm still not diabetic, if that's any reassurance for you. I do still become hypoglycemia, but almost always because I do stupid things, like not eat breakfast, etc.
This is very helpful. I have found that giving him 10 nut crackers with peanut butter right before bed has helped with morning lows. Which is a great help because he was so weak he could not even get out of bed or walk some mornings and now he is doing much better with this bedtime snack. He is learning which foods make him feel good and which don't and making smarter choices. There are so many times it has been up to me to notice when he is getting low and I worry for his ability to be on his own because he is unaware except that it is suddenly very difficult for him to think and do things he normally can do without any trouble as in spell his name etc... just gets super confused and a snack makes his mind sharp again. I am just doing what I can with the knowledge I have but I hope it's enough because I don't think I will ever find a Dr. until/if he becomes diabetic.
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Old 09-29-2015, 09:36 AM   #20
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I second the bedtime snack. I usually have a few pieces of extra sharp cheese, or a spoon of peanut butter...keeps me from feeling like a zombie when I wake up!
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Old 10-25-2015, 06:23 PM   #21
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Best wishes and prayers that you can find the right doctor for him. Sounds like the nut/peanut butter crackers are doing the job. I have a very thin friend who is hypo and has to eat muffins/energy bars every 2 hours.
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Old 12-07-2015, 01:02 PM   #22
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I finally found some help for my DS! the Dr. is having me test his ph balance and basal temperature along with keeping a food log for 2 weeks, he suspects my DS is too alkaline and possibly low functioning thyroid. AND he wholeheartedly agrees that it is ridiculous that these other Dr's aren't concerned about the effects this hypoglycemia is having on my DS. The DR told me to eliminate ALL sugar even natural from his diet and get him into slight ketosis, which I am a little worried about that because he is so frail already, what if he loses the very little amount of body fat that he does have? and he wakes up with super low blood sugar so how am I supposed to help him bring it up to a functioning level without treating him with sugar? He did not have any answer for me except that the only way to get my DS's body to regulate his insulin is to avoid all sugar. Any ideas on how to safely bring up his blood sugar in the morning without giving him sugar? He is so weak he can't even get out of bed and when I just give him protein like bacon and eggs he doesn't come around quickly enough to function for school. I am just so happy I have found someone to take my DS's side and get to the bottom of this.
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Old 12-08-2015, 09:18 AM   #23
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I finally found some help for my DS! the Dr. is having me test his ph balance and basal temperature along with keeping a food log for 2 weeks, he suspects my DS is too alkaline and possibly low functioning thyroid. AND he wholeheartedly agrees that it is ridiculous that these other Dr's aren't concerned about the effects this hypoglycemia is having on my DS. The DR told me to eliminate ALL sugar even natural from his diet and get him into slight ketosis, which I am a little worried about that because he is so frail already, what if he loses the very little amount of body fat that he does have? and he wakes up with super low blood sugar so how am I supposed to help him bring it up to a functioning level without treating him with sugar? He did not have any answer for me except that the only way to get my DS's body to regulate his insulin is to avoid all sugar. Any ideas on how to safely bring up his blood sugar in the morning without giving him sugar? He is so weak he can't even get out of bed and when I just give him protein like bacon and eggs he doesn't come around quickly enough to function for school. I am just so happy I have found someone to take my DS's side and get to the bottom of this.
so glad you found a dr. to help - i get being worried about him losing what body fat he does have but maybe just like us lcer's changing what he eats will also change how he metabolizes it as well and hopefully it will balance out. the only suggestion for bringing up his blood sugar i can think of are lc veggies along with his breakfast - maybe even some type of beans!?!?!

its probably gonna be a bit of trial and error just keep trying til you find the formula that works for him.
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Old 12-08-2015, 12:00 PM   #24
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There is a product called Super Starch from a company named Generation Ucan. It was originally developed for kids with a glycongen storage disorder, but is now all the rage among low carb distance runners because it gives you long-lasting energy without a spike and crash in blood sugar. I use it and it works for me.

They have powder that can be mixed into something, or they just came out with chocolate bars that are similar to a Three Musketeers.
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Old 12-08-2015, 01:02 PM   #25
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so glad you found a dr. to help - i get being worried about him losing what body fat he does have but maybe just like us lcer's changing what he eats will also change how he metabolizes it as well and hopefully it will balance out. the only suggestion for bringing up his blood sugar i can think of are lc veggies along with his breakfast - maybe even some type of beans!?!?!

its probably gonna be a bit of trial and error just keep trying til you find the formula that works for him.
I hope so, he is eating more than ever now and seems always hungry which is super because for most of his life he hasn't eaten much because he gets full so easily. I have been giving him kerry gold butter to snack on for calories, he loves it so much he would eat the whole package.

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There is a product called Super Starch from a company named Generation Ucan. It was originally developed for kids with a glycongen storage disorder, but is now all the rage among low carb distance runners because it gives you long-lasting energy without a spike and crash in blood sugar. I use it and it works for me.

They have powder that can be mixed into something, or they just came out with chocolate bars that are similar to a Three Musketeers.
Thank you, I am googling it now!
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Old 12-08-2015, 06:45 PM   #26
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Get him to an endocrinologist. A GOOD one. There is something wrong physiologically and treating the symptoms doesn't come close to fixing what's wrong. I know you've been so concerned about your child and it's terrible that you have to basically disregard what the so-called medical professionals have to say to you.

How criminal is it that the Dr told you, "No worries. Your son's muscles will just be eaten up as fuel as needed." Does that Dr even have a legitimate medical degree? I wonder!

Until you figure out what is causing the low blood sugar, you can't rest. There could be a tumor on his Pancreas or something. You can't know until you've tested and ruled out all the possibilities. Please don't settle for anything less than that.
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Old 12-10-2015, 05:42 AM   #27
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Get him to an endocrinologist. A GOOD one. There is something wrong physiologically and treating the symptoms doesn't come close to fixing what's wrong. I know you've been so concerned about your child and it's terrible that you have to basically disregard what the so-called medical professionals have to say to you.

How criminal is it that the Dr told you, "No worries. Your son's muscles will just be eaten up as fuel as needed." Does that Dr even have a legitimate medical degree? I wonder!

Until you figure out what is causing the low blood sugar, you can't rest. There could be a tumor on his Pancreas or something. You can't know until you've tested and ruled out all the possibilities. Please don't settle for anything less than that.
I am wondering about this also. It has been happening since he was 3 years old. I did the ph test and also checked for ketones in his urine (since the Dr. wants him in trace ketosis) his ketone level is 8.0. I called the Dr. and am waiting on him to call back to tell me what I should do. my DS's fasting blood sugar was 48 today, doesn't seem to be stabilizing.
Oh believe me, I will not rest!
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Old 12-10-2015, 09:54 AM   #28
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You need a new Dr. If you are continuing to take him to the same one or the same group, you're not going to get to the bottom of this. It's as serious as you think it is. Please find an endocrinologist that accepts your insurance and tell them how long this has been going on. Please. Don't wait.
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Old 12-10-2015, 12:19 PM   #29
jedswife
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had to go "Out of Network" to find the dr. to help my son so if necessary do that - the dr. we found out of network performed tests that the others did not and it was noninvasive - original dr's were doing endoscopies with biopsies and found nothing...so you just never know
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Old 12-10-2015, 12:51 PM   #30
MSN08
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The current Dr. is Alternative medicine. for years in different states and no one until now has even taken on any real concern in his health, so I would like to stick with this Dr. and see if he can figure this out. He has helped me tremendously, so I have faith in him. If he can't help, do I just go to every endocrinologist in the yellow pages until I find someone who knows what they are doing? GRU was supposed to be the pediatric experts and they failed miserably. So I have no idea who I should go to. Most Dr's in general do a poor job of helping people in my opinion. I am not very trusting in them anymore, but I need someone to care about my DS and I do not know who to turn to.
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