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Old 02-17-2017, 04:44 PM   #61
CarolynF
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Judy!! poor Dd! At least they gave her morphine. Gallstone attacks are no fun. Glad they removed the culprit. She will fine in a week I imagine. Well, maybe the Kidney stones don't worry them unless they move. They just blast them any way and hope for the best. Scary that you have to sit that long. The night shift might have been sleeping.

You needed comfort food. We need to try that place sometime.

keep us posted on the patient.
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Old 02-17-2017, 05:29 PM   #62
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Unfortunately I've got 3 members of my family that did not have kidney stones blasted - they were operated. They go in and fish them out. My sister nearly died from one. It had blocked the flow of urine for so long she was septic.

We've got a lot of kidney stone experience in this family.
I have always passed mine. Sometimes after several days of intense pain. But some aren't so lucky.

Point being - we don't disregard them and wish the doctor there hadn't dismissed them. We still don't know whether that stone or stones was part of the reason for such intense pain for DD.
Just wish we knew how many/where/if both kidneys or just one - you know. DD has had them in both kidneys at the same time. Brutal.

I think I still need to sleep some more! LOL

I need to go see what Lean for Life is.

I feel like we've lost Karen...
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Old 02-17-2017, 09:30 PM   #63
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Wow, Judy! What a night for DD and for you and your DH too. How frustrating that is! And it usually looks like there's really no reason for that kind of treatment, or lack thereof. Maybe you should right a letter to the head of the hospital. It might save the next poor soul going there for urgent care. I sure hope you get some answers and I hope your DD feels much better quickly.

Carolyn, dress shopping....how fun and how sweet for Sarah to invite you along. You can just enjoy the process without any of the stress of it being your daughter.
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Old 02-17-2017, 10:04 PM   #64
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During the actual operation - the removal of the naughty gallbladder - the concierge person walked through. They have always been very nice and accommodating there. They'll get you anything and try to get any information.

I told that girl my story and she asked if I would please speak to their ER manager. I declined because I was incredibly sleep-deprived and didn't want my judgment full of health crisis and sleep deprivation. LOL

She said she'd relay it anyway, and they're going to contact DD.
You know how you might see things a little differently after the crisis has passed and you've had a couple of nights' sleep?
I think they'll be informed - I doubt it will matter much.
We've just had such better experience there before this.

I'm so glad you can check in Sandy. It looks like you all are having a BLAST. You and your DH planned so well. You're still young enough to enjoy your retirement. And so glad you insisted on your DH's surgeries so he can enjoy this time, too!

Carolyn is tomorrow the day to try on dresses?
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Old 02-18-2017, 09:05 AM   #65
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Hi gang....Karen is still here. Things just got wonky for me this past week.
But before I go into that....

Carolyn - Congratulations to Brett & Sarah and all of you. Have fun on "Dress Day" on the 25th. And new walking shoes are such a nice springtime lift to any wardrobe even if they do have to accommodate inserts (don't we all have inserts by now ). I briefly googled Lean for Life, hadn't heard of it. Looks like a whole system of support. Wow, wouldn't it be fun to be 128 lbs in your mother of the groom dress??? I'm pulling for you!! The places for the wedding sounds lovely! Exciting times for all of you for sure.

Judy - You've had a complicated and exhausting week too. Hugs to you and I hope DD is feeling better today. I'm still "ouching" for her. Not fun at all!!! She's had a LOT on her plate this last few weeks (new baby, death, surgery....when it rains it pours) and it spills over to you as you care for and comfort her and her family. Get a nap when you can and I know you know that "this too shall pass"....never fast enough but eventually the sun does come out again and the days look like something you remember of normal. Hugs

Sandy - So happy that you are having a fun and relaxing winter filled with new experiences and enjoyment. I can see you smiling through your sunny days in the deep south by the ocean. Just hearing about your experience feels like a rush of summer breeze blowing on my face.....ahhh, I soak it in. Thanks for sharing!! And now that your friends are gone I imagine you are back on track with getting those extra "fun (party)" pounds off.

And I think Lori is the one who is lost........calling Lori, calling Lori
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Old 02-18-2017, 10:13 AM   #66
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I've been missing because I too have had a complicated week. I've come on and read what is happening for you all but no time or energy to write.

I won't share all, just the highlights, or I would have 8 pages the size that Judy wrote telling about her experience the night they took her daughter to the hospital. I'll spare the long details but in a nutshell I have had 3 clinic appointments for this bladder surgery situation, I carted my little senior friend, Lainy, to clinic one day and my son had his port-a-cath surgery this week. AND MY BACK IS TRASHED!!! I knew adding my medical needs to the "chicken soup" of my life would throw our family "normal (far from normal)" into a tail-spin and it did. You see, in reality, I'm a caregiver who often needs some care-giving of my own but there is no one to care for me so I muster through and pay a mighty pain price for it. That is what comes from living hundreds of miles away from family. You are always doing life solo.

So my son is healing but had a couple rough days. He's only been off IV medications for a total of two weeks since November and it looks like he might be hooking up again next Tuesday.............ugggh. IV poles are a normal part of our household decor....we'll see what Tuesday brings but his lungs have taken a hit from the port placement.

My little senior gal is a crippled up mess, 78 years old, all her kids live in states far away and I'm her "adopted" neighborhood daughter. Getting her arranged to move into senior living, selling her house, packing her house and helping her with clinic appointments (she gets IV infusions each week for arthritis..new drug study), and she can't drive anymore......whewwwww, getting older is tough. All I really do is drive her, support her mentally, help her make decisions, and make sure she doesn't fall when carting her around. I don't do packing and things, she has hired a lady to do that, but it is just a lot of decision making. She was supposed to get her senior apartment March 1st but it has been pushed out to April 1st. I was hoping she would be settled shortly after March 1st so the facility could take care of a lot of her needs but it looks like this is going to be another 5 weeks, or so, of "stuff" to deal with. Her son is coming in 2 weeks to do a huge haul of her things so I'm hoping that will alleviated a lot of decisions for her to make. She is having such a hard time parting from a lifetime of things. Lots and lots of shuffling of boxes and me trying to get her to see that she won't need those things at the senior apartment anymore. I understand it and yet I can see that her ageing mind is just not processing things well anymore. Complicated and so sad. Sometimes we just sit and cry together over her loss of home, community, items of remembrance...just sad. It just takes time to work through all this.

Then for me, after all these clinic appointments and being right at the door of being set up for bladder surgery again I kept asking questions and was not getting the answers I wanted to hear. My chief complaint all along has been to clear up these bladder infections. Come to find out the surgery was not going to assure that the infections would be alleviated. My bladder has dropped but that is not the reason for the infections. The tests and voiding diary show that I'm emptying well so there is little chance that the infection is coming from residual urine that is not emptying correctly. So why am I getting these infections....no answers from Mayo....hummmmmm????? So my surgery is off, no surgery.

I tell you, if you don't ask the right questions you just don't get the right answers anymore, even at the Mayo Clinic. In time I will probably still require the surgery but that surgery comes with huge risks, like having to self-cath for a lifetime, bladder pain, leakage, additional surgeries and in the end I don't even feel any discomfort from the dropped bladder.

The gynecologist that I saw suggested estrogen for the bladder infections so I started on a vaginal insert about a month ago. I added a cranberry tablet on my own at the same time. The urologist at Mayo poo-pooed both however, the younger resident fresh out of medical school encouraged both. But since the surgery would do nothing for the infections I decided to wait and see what I could figure out on my own with more natural solutions. For one, I'm highly suspicious of some of the body washes that I use and have thrown them in the garbage and I want to give the estrogen and cranberry a good try. The Urologist is top in her field and said anytime I want the bladder lifted to come back and she will do it but she agreed that it is not an emergency and if it becomes worse I will know it and will want it done.........whew....

So with all the clinic trips, additional sitting, up and down stairs with my son my back is just trashed. So I have not wanted to sit here typing to all of you. It's better today after a nice night with my muscle relaxer. That was the other problem. I wanted to take my muscle relaxer earlier in the week but it makes me unfit to drive for a day and I had things to drive to every day so my back pain just kept being more problematic.....again, whew....

And, what little time I did have on the diet board I have been trying to find some Weight Watcher buddies. I think I've found a couple, trying it out. Counting the WW points has been working well. I think my action plan is to get the weight OFF with WW then I can keep it off with IFing.

Sorry so long.....my life just gets complicated at times. When my health was good I could keep all the balls in the air but now with my chronic back pain I struggle when things get wonky. Really, all I can handle is caring for my son, myself and our home. Anything past that becomes problematic. Trying to squeeze in a surgery for me was going to test things but then adding Lainy's move to senior living has really thrown things for a loop. But she needs help and I'm going to do what I can to help her. But like I said to Judy, this always passes. Normal is right around the bend. A person just has to keep a clear head and trust that God is clearing the path before us. And he did.... He closed the door for surgery at the county hospital. He kept me uneasy about the surgery at Mayo until I finally asked the correct question and got the correct answer. He brought to mind that I seem to have problems when I use the scented shower jels (I don't routine use them).

If we are in Him, our Lord is always working things out for our good even when we can't see it. I'll never understand all the challenges in my life but I know for certain that it is all for something that He alone is working out for the good of His kingdom. This sheer vale between us and Heaven is only a mystery to us. It all makes perfect sense to Him who holds the keys to Heaven and I'm so thankful that he cares for us and encourages us when the visible looks confusing.
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Old 02-18-2017, 07:06 PM   #67
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Judy, yes after Dd recovers from the gallbladder surgery, she will have to have the stones examined more thoroughly. My brother had them and had the operation. He has a couple floating around.


Next Saturday is the dress day!!!!!

Today I judged high school forensics all day. I love that! My kids were in that and I always enjoyed it.

Karen, our Buffy (on this board) had horrible bladder infections. She went on a low dose antibiotic. Yes, the lift won't cure the infections. My friend who had the lift was always leaking. She had to wear heavy pads. she is better now.

Cranberry is good to fight the infections plus D-mannose is good, too.

Lean for Life is a structured program. It is low carb, moderate protein, and lower fat.

hugs all around
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Old 02-18-2017, 07:37 PM   #68
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Thanks Carolyn, I'll check out the D-mannos. I'm hoping I won't have to do the low dose antibiotics, but will if I have to. So far so good and hoping the cranberry does the trick.
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Old 02-18-2017, 08:58 PM   #69
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What is high school forensics?? Sounds fascinating - like police work!
Would love to know.

Carolyn is the dress trying-on in Tulsa? I promise I won't crash it, but I wouldn't mind walking by.....

Karen, that is a LOT to go through. But I agree - it seems as if you're being looked after. I am SO sorry about your back. So sorry. You just have so much on your plate.

My darling niece had bladder infection one after another. She was told to ditch her shower gels, too. Maybe that's one of the components for you, as you've thought, too.

I wish I had something smart to say about all you've let us know, but I just don't. You're really "on it" as far as your own challenges, so I'll just cheer you on in spirit.

One thing - I feel teeny tiny about complaining about a little lost sleep, that's for sure!

Glad you are so capable and know we are with you.
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Old 02-19-2017, 08:29 PM   #70
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Yes, what is that forensics about? Interesting

Thanks Judy for your kind words. Things seem to be settling down a little bit for the moment. My son's port site is feeling better. When he feels better I do better if you know what I mean. No matter how many years I have of this under my belt it is always hard to watch your kids hurt. He's a trouper though!
And my back is finally feeling better. It just needed rest of which I've had some this weekend.

And your lost sleep was just as miserable as anyone else's so complain girl, every situation is more miserable when sleep deprived. How's your daughter doing? Poor thing, I hope she heals fast.

I've had a good week with my diet plan...yeahhh!!
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Old 02-19-2017, 09:09 PM   #71
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Karen, people who have been through so much seem to be the most kind.
That is you.

DH and I went over to DD's. We took a STUFFED FULL gallon bag of chicken tenders, smoked by DH, so DD can prepare lots of things with that.

We stayed more than 2 hours. I had baby Milo the whole time and DH played hard with Maddox. DD is MUCH better and I think she'll recover quickly. DSIL was just glad someone else came to help with the kids. LOL
Baby Milo, born Dec. 5th, is SO smiling, laughing, cooing, baby-talking... he's just a darling. We thought baby Maddox was easy - this kid has it all down. He's just a precious love.
Just please change his diaper the MINUTE he pees.
Other than that, he's a happy little guy.

Maddox likes to show off as a 3-year-old, but cannot stop coming over to kiss his little brother.

Karen, your son will always be your son, your baby. I am praying with you. Glad the port site is settling down a bit. Hope you can get the rest you need for your poor back.

Congrats on your entire week with a good diet!
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Old 02-19-2017, 09:17 PM   #72
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Karen, so sorry for all you're going through. You really do sound like a trooper!! And a great mom and friend.

Judy, I hope you're getting rested up. And that DD is doing well.

Forensics=debate. That's what I think anyway. Back in "the olden days" they called it debate, now they call it forensics. I don't understand why.

I've caught some kind of cough virus. I don't feel terrible but I have an aggravating cough that I can't quite shake. Ugh! That's a pretty small thing to complain about as I'm having the time of my life down here but it really is a pain in the butt! This is the last week our friends are going to be here. As I said, I'm really looking forward to just DH and me having this last month to ourselves.
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Old 02-19-2017, 09:17 PM   #73
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Judy, your day with family sounds perfect!!!
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Old 02-20-2017, 01:46 PM   #74
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Hi everyone..

Yes, Sandy is right..Forensics is drama/speech/ Lincoln-Douglas debate, etc..Fun to see the kids do their thing..It was great. Debate is regular debate and takes place in the fall. Debate is not as entertaining as forensics.

9 a.m. at David's..but I don't know which one..I'm being picked up at Brett's apartment..
Hoping she finds the perfect one this week..She wants princess style with long lace sleeves.
Still working on the venue..More appts coming up.

Karen, our boys are special..Your son is blessed to have you..Glad he is healing up a bit.

Bible Study is over for the year..One lady (who barely comes) wanted to do another one..I said, "No, no one shows up in the spring/summer"..We need a break to do something on our own.

That cough virus is all over here..My friend had it and got some codeine cough syrup..Be well, Sandy.

OKAY..Groom's cake question..I never had one, dd never had one, but I guess it is a big
thing down here. Brett loves apple cake. He wants an apple cake groom's cake. Sarah's
mom is going to make the wedding cake..She was practicing yesterday on them. I didn't know she could decorate cakes, but its all good..So, I had better be in charge of the groom's cake. I guess..
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Old 02-20-2017, 01:55 PM   #75
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Yes, everybody has a groom's cake that I've seen.
Now, SINCE YOU DIDN'T ASK....
This is my great-grandmothers recipe. It's so so simple and it may not be at all what Brett had in mind, but I'm throwing it out there anyway. So simple but people rave.
The top gets a little crust and the rest is kind of gooey.
Queenie's in Utica Square asked my mother for the recipe. I think they are going to use it and credit my mom.
This makes an 8x8. Obviously you could expand the recipe:

APPLE PUDDING (Lue Ayers Smith)
1 cup sugar
1/4 cup fat
1 egg
1 teaspoon vanilla
2 1/4 cups peeled, cored and chopped apples
1 cup flour
1 tsp. each baking soda, cinnamon and nutmeg

Mix first four ingredients together. Stir in chopped
apples. Add dry ingredients and pour into greased 8”
or 9” square pan. Mixture will be stiff, but the
cooked apples make plenty of liquid.
Bake in 350° oven 30-35 minutes.
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Old 02-20-2017, 02:00 PM   #76
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Yummy..This looks amazing..I wrote the KSU dining room director for the recipe..She gave it to me a few years back, but I think I lost it..(not good).

I'm saving this...
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Old 02-20-2017, 02:08 PM   #77
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Oh that would be fun - to use his college apple cake.

But yes, save this.
In fact, I keep thinking I'll try it with Better Than Flour and artificial sweeteners and fewer apples + apple flavoring.
Someday...
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Old 02-20-2017, 08:20 PM   #78
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Forensics = debate Who knew??? Kids, always changing things to make us feel old and dumb.

An afternoon with Maddox and Milo sounds like heaven. How precious that big brother rounds the room with kisses for baby. Don't you just want to bottle this little space in time (minus the gallbladder surgery) and have it never end? And I don't blame little Milo one bit for crying when his diaper is wet. I cry when mine is wet too. (only kidding)

I had my first Kegal training with biofeedback today. Weird, weird, and weirder!! Glad to learn this before I actually need diapers....hopefully never.

Awww, Sandy...not another virus. I guess I'm happy to be up north where usually the virus bugs are dead in the winter...HOWEVER...we are having 50 degree weather, all the snow is melted, and it rained today. So NOT Minnesota! But by Friday we are predicted to get back to 30 degrees and a foot of snow coming in. I hope we don't get any of those southern virus's in the mean while. Get feeling better Sandy.

Carolyn...it sounds like your kids are planning a very nice and sensible wedding. Good for them. That Apple Groom's Cake sounds yummy...(with pure butter).

Thanks for the good wishes for my son. He's healing up well. His lungs have taken a hit from the port placement so probably going back on IV meds tomorrow (clinic appointment) but we are expecting that, just routine for us. And yes, Carolyn, our boys are wonderful.

And my back is back to being happy again.....yeahhhh .....and another good diet day.
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Old 02-20-2017, 08:24 PM   #79
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Carolyn...tell us more about your "lean" program. Do you check in with an online coach or something? How does that program work?
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Old 02-21-2017, 06:53 AM   #80
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Lean for life is a program. I have the book. It's called Lean for Life Phase One..2001 is the version. There is a thread on this site under Other Plans..
I'm not sure it describes the program or not. Basically, it is eating 3 meals and 3 snacks. Low carb and lowish fat and balanced protein. I can scan you the important page if you pm me your email. Sandy did it for a little while but was too hungry.

Gotta run to the eye Dr for my red eye check up. I haven't worn my contacts in 2 weeks, per the dr., so hope I can today. We shall see.
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Old 02-21-2017, 07:55 AM   #81
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Oh please let us know about your eye.

Karen I've known about kegel exercises since my 20s.
It's one of many exercises I know about, but do NOT do! Sheesh.
Hope you are more consistent than I am!

Hugs all around!
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Old 02-21-2017, 05:28 PM   #82
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I'm not one bit surprised that I tried Lean For Life, however I sure don't remember it. If I was hungry I probably pitched it right away!! I hate to be hungry!!!

I've done kegels on/off for many many years. They used to advise doing them at red lights. I don't really think about them anymore but still do them automatically throughout the day. I have a pretty good bladder, according to my friens, lol.
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Old 02-21-2017, 05:57 PM   #83
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It is good to have a good bladder...Believe you me..

Okay..One more month on allergy shots and Restatis..No contacts..

I unboxed my daughter's wedding gown today..I paid $75 to have it stored and processed and it was like getting into an Egyptian tomb to get this beautiful dress out..Her veil was
also in it and I steamed it in the bathroom and asked Sarah if she wanted any part of it,
the tulle, the headpiece..With no strings attached. So, I'll bring it down and see what she
thinks...Pick the dress out, then find the veil is the rule.. I'll put it with the dress and sell
it downtown if she doesn't want it.
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Old 02-21-2017, 10:28 PM   #84
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Quote:
Originally Posted by CarolynF View Post
Okay..One more month on allergy shots and Restatis..No contacts..
Dang. I am so vain I would resent this.
But as I always always say, "IT'S JUST MY EYES! JUST MY VISION!"
That gets me straightened out.

Quote:
Originally Posted by CarolynF View Post
I unboxed my daughter's wedding gown today..I paid $75 to have it stored and processed and it was like getting into an Egyptian tomb to get this beautiful dress out..
LOL!!!!!
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Old 02-22-2017, 07:06 AM   #85
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Yup, on the contacts. I had better be contact friendly by the wedding or I will order another pair of glasses, more wedding friendly. Lolo..

Going to exercise in a bit. Hoping to get in the 150's by next week.

Are you working hard, Judy?? Karen?
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Old 02-22-2017, 08:14 AM   #86
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I am working hard!!!
I have got to get back in a rhythm. One where I work hard, then put it away.
I'm still catching up from last week's DD-ER-operation distraction.
I just couldn't get myself interested in my work until Sunday.
I obviously just didn't bill for the time I didn't work, but he didn't hire me to NOT work, so I better get my head on straight.

Now DH's mother is in the hospital (again) for pneumonia (again).
Her blood pressure is very very low, so they're giving her dopamine and treating the pneumonia and letting her sleep, which is all she wanted anyway.

I'm not going to say one word, but privately I am wondering how aggressively they'll treat her going forward. She's well into dementia, can't remember what someone told her literally 5 seconds previous. Can't remember to change her Depends, wants to sleep a great deal....as a person who often has trouble sleeping, I always think sleep is a blessing.

ON THE OTHER HAND...she's typically in great spirits and glad to see anyone who visits her and has not one self-pitying moment. She's fun to visit - a good audience. Can't contribute much, but is happy for the company.

This seems very serious right now. DH is on his way over.

So working - I feel very weird I can't just go over there and hold her hand. She's been a dear, lovely person to me. But I cant.

And I really need to take a page out of my mother-in-law's Never Feel Sorry For Yourself book. LOL

I know you can get into the 150s soon, Carolyn. You've got a great reason!
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Old 02-22-2017, 10:02 AM   #87
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Well finally.........I'm down 5 pounds. Weighed in this morning for the first time since the beginning of January and got greeted with 168 instead of 172 or 173. YES!!!!! The Weight Watchers seems to be a better plan for me.

Carolyn....bummer about the eyes. You just can't seem to get past this hurdle. Dang!! We're predicted to get a foot of snow on Friday, I'll send it your way if that would help those allergies. Oh, I can just picture you gently lifting the box off your daughters wedding dress. Maybe Sarah will like the whole box and keep it all....shopping done.

Sandy, I'm with you....no starvation here. If i'm hungry or dizzy all the time that diet plan is chucked into the trash. Hopefully it is the cats-meow for Carolyn though! How's your cough???....better I hope.

Kegels........oh my gosh, I am terrible at these. I have to concentrate so hard to find that muscle but I'm dedicated to mastering it. I've known about them for years, actually worked the Urology floor as a receptionist checking patients in at the Mayo Clinic in Rochester (one of my old jobs, 20 years ago) and heard "kegels" all the time but didn't know how to do them correctly and at the time didn't feel that I needed them..........wrong!!! So Sandy, I'm jealous that you can do them at stop lights. So far I can only do them (slightly) while laying down with absolutely no distractions. The nurse said it may take 12 weeks to get comfortable with it.........blahhhhhhhhhhhh!!!

And Judy.........ahhhh, so sorry about your mother-in-law. I think the only blessing in dementia is that the person usually quickly forgets any discomfort they are personally having but it is hard on the family and friends as they watch their loved one mentally slowly slip away. Are they treating the pneumonia? It is so hard to sleep with pneumonia because of all the coughing.....awww, and sore ribs from coughing. I doubt you are feeling sorry for yourself and lets face it, sometimes life gets hard and we all need a moment or a day for a good cry from time to time. Your family is sure going through it lately. I swear, when it rains it pours, doesn't it? But, I've found that eventually the sun shines again and just as quickly as all the troubles came they can quickly resolve and its days filled with light hardheartedness again.

My son was at clinic yesterday...yep, just as we thought, his PFT's dropped (lung function numbers) so he's admitting to ICU today to desensitize to an antibiotic that he is allergic to (they didn't have an available bed yesterday so they just called him in a couple hours ago). It sounds terrible but really not, we've done it over a dozen times. He admits to ICU....yep, just walks in....now how many people do you know who get to walk themselves into the Intensive Care Unit? Then they start the med under a very slow drip, like it only drips one drip every 15 minutes at first then over a 24 hours period they slowly speed up the drip until it runs at the desired dosage rate. He also takes a couple different anti-allergy meds and they slowly trick the body into believing that it is ok with the allergen. How's that for modern medicine??? I don't even go with my son to the hospital for it anymore, he's fine doing it alone. He is in ICU for starting the med and observation only (and obviously intervention if things don't go well....ICU staff at the ready if he crashes, I hope not!) but then he gets a shipment of his home-going IV antibiotics and he comes home about 30 hours later and we play hospital for another 4-6-8 weeks at home. BUT....this time is different, if he can't get off this drug all the doctors are talking about playing the "list him for lung transplant" card. So our life may get interesting in 6-8 weeks. Honestly we are all ready for it. We've been on this holding pattern for just short of 7 years. We'll see, maybe zosyn can do its magic one more time but if not we're probably headed for transplant this spring/summer. No cause for concern....like I said, we are ready for this next step. My prayer is that my son will get new lungs before being oxygen dependent. So far, Praise the Lord, he does not have daily oxygen but not being able to get off IV antibiotics and being resistant to all antibiotics is a qualifier for lung transplant. This last drug that he is allergic to and has used for years is the last available antibiotic and with being on antibiotics since November and with his lung function continuing to drop that will qualify him.

And that is a little piece of my Paradise for today........Blessing to you all!
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Old 02-22-2017, 10:20 AM   #88
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Oh wow. I hope he would be a candidate for lung transplant, but I worry that means he has to get "worse" if I'm reading it right. I realize the anti-rejection drugs are a huge thing, but it really gives us hope your son could have a whole next chapter of life.

My mother-in-law is being treated, in fact zosyn is one of her antibiotics! She was also diagnosed with pulmonary fibrosis.

My dear friend's mother is 91, in a nursing home, mind completely gone. She is jealous that my mother-in-law is further along than her mother. My friend's mother's body is evidently quite healthy. But her mind is completely gone. Very tough on my friend, of course. She and her brothers know she will not treat the next illness aggressively, unless it makes their mother uncomfortable, of course. They've stopped any medication to prolong life. Only continuing medicine that is for comfort.

I think it's so wonderful they've discovered they can trick the body into not over-reacting to something as if it's an allergy. I think they're doing that with some kids with peanut allergies, too.
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Old 02-22-2017, 12:46 PM   #89
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Hi ladies..

My goodness..Judy, I am so sorry to hear that your dear motherinlaw has pulmonary fibrosis.
Gary's best friend has it and has had it for 4 years, which is a miracle, but he is on oxygen all the time and can't really walk long distances..He keeps going even though his wife is
very nervous about it.

My little reading buddy had red eyes today..Great..Bad allergies. He was going to the eye doctor, so I was glad to hear that..

Karen, there are mosquitos hanging around..Send the snow, please...

Judy, yikes on your work..I'm so glad I don't work, I wouldn't be very good at it..LOL..

Beth's gorgeous dress is a size 10, when she was a 10, and Sarah isn't that small, plus
she is taller. Beth chose an off white, which looked great with her skin tone..Sarah would
look good in off white, too, but I think she will choose white. We have to leave at 6 am to get to Tulsa in time..(bathroom stops for me).

The Kansas State lady is sending the recipe for his favorite apple cake..I think the groom's cake will be a football field. The one I saw on Pinterest had fondant as the playing field..Looked good, but do you like fondant???

Karen, we will be here for you if your son has a transplant..They like to put it off until the
last minute, I think..Will be praying for his health.

My lunch has been a shake..Not terribly filling, but on my plan I can have a protein 2 hours later..(bar/boiled egg).

Hugs to all of you...

Cindy, how is our Leonard??????
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Old 02-22-2017, 06:17 PM   #90
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Just checking in....

Judy....actually my son might not have to get much worse because he has been resistant to all the antibiotics for the last few years (about 3). What that means is when they put his culture in the lab that none of the antibiotics work. However, just because a lab dish says nothing will work they still rotate the antibiotics to see if anything will work. My son's doctors call it "shooting in the dark"....as in "just throw a high powered antibiotic at it and see if he can hold his lung function where it is currently. Actually my son is always on 3-5 antibiotics all the time, some are IV, some oral, and some inhaled. They switch them around about every 3-4 weeks to try to confuse the bacteria. But all the antibiotics are starting to act like Kool-aid. The bacteria is winning this war. This one last round of zosyn is the last try and if his lung function continues to drop he will get listed. So hopefully he won't have to get worse. We've seen people with CF both ways. Some so labored to breath that they can't hardly talk to you and others that look like my son does now so I hope he gets lungs feeling like he does now. He's been through so much. It would be nice if this time everything could go along smoothly with little discomfort. That is my prayer. Thanks for all of your support.

And Pulmonary Fibrosis for your MIL......hummmm, not fun!!!

Ahhh, sounds like you are still going dress shopping Carolyn....have fun.

I have to tell you.....abut the grooms cake....Now don't do this because it was hideous but I caught an episode of Sister Wives where the baker made the groom's cake in the shape of a deer or an elk. This deer was life size and stood upright, 3D looking. The cake was red velvet cake so when they cut into the cake it sort of looked like meat. I guess the groom was big into hunting so a lot of people loved it. I thought it was the weirdest thing I'd ever seen. So if the groom and the guests are big into hunting...well, there's an idea for you.
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