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Old 11-03-2017, 03:00 PM   #1
Anne Frank
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Type 1.5 Diabetes (LADA)

Does anyone have this? Looking forward to hearing from anyone who has it. Thanks! It's making me
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Old 11-06-2017, 08:35 AM   #2
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I'm sorry, but I don't have LADA....at least I haven't been diagnosed with it, but at one time I did think I had it. While I was going through menopause, my A1c crept up to prediabetic territory, but nothing else pointed to Type 2, as I'm underweight, I exercise, have normal fasting BS, have low fasting insulin (which is what made me think I may have LADA as I've read that Type 2 comes on as a result of insulin resistance so fasting insulin is usually high), low C-peptide, low triglycerides. My doctor didn't want to know from LADA. So, now it's ten years later and my numbers are still the same, but now I'm on Metformin which may or may not be helping me. From what I understand, people with LADA eventually have to go on insulin since their body stops making it. I'm sorry you're going through this and I'm sorry I couldn't answer your question.
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Old 11-07-2017, 07:15 PM   #3
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I posted but don’t see the post. Anyway, I have tested positive for the antibodies for LADA, called Gad 65, but my A1c is still in the normal range. I eat lower carb to not tax my pancreas too much as I don’t make much insulin. I think it helps a lot to do that and to avoid gluten. I’ve known I’m headed for LADA since 2010, have had blood sugar issues since 2004. I also have Hashimoto’s thyroiditis, another autoimmune disease, since about 1996.
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Old 11-08-2017, 08:48 AM   #4
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I posted but donít see the post. Anyway, I have tested positive for the antibodies for LADA, called Gad 65, but my A1c is still in the normal range. I eat lower carb to not tax my pancreas too much as I donít make much insulin. I think it helps a lot to do that and to avoid gluten. Iíve known Iím headed for LADA since 2010, have had blood sugar issues since 2004. I also have Hashimotoís thyroiditis, another autoimmune disease, since about 1996.
Girondet, may I ask why you were tested for the LADA antibodies if your A1c is in the normal range? My A1c has been in the prediabetic range for the past 10 years, but my doctor has had no interest in testing me for LADA. My fasting insulin has been low since he started testing it, so, to me, that points to LADA. I also have had thyroiditis for the past 8 years, originally diagnosed with very high levels of antibodies, although I was told that I have "silent thyroiditis", not "Hashimoto's"; I have no idea what the difference is. Perhaps because I have no enlargement of my thyroid?
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Old 11-08-2017, 10:09 AM   #5
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I had myself tested through an on line lab service, for a couple times in a year and also my c peptide which is a test of how much insulin is being made. I presented that to my Dr. I didn’t think she’d test me, and that’s typical unfortunately. She agreed I’d probably end up a type 1 on insulin. When I changed cities and docs I had a couple who were willing to let me get tested again. I have always tested positive but the gad 65 is associated with Hashis as well. Anyway, my situation has remained pretty stable and I’ve even been able to have thyroid meds lowered twice this year. I’m convinced it’s because of eating gluten-free but I have no proof. My latest docs don’t think it’s necessary to ever test gad 65 again. If my A1c gets to diabetes I will take insulin, nothing else. Autoimmune disease does run in my family.
My diagnosis for thyroiditis no longer says Hashis; maybe because I don’t show those antibodies anymore, I forget what they’re called, but my dx says something like hypothyroid due to atrophy. Whatever. It seems to be bouncing back. I feel very well, am 68 and in normal weight range. My feeling is that wheat and grains were terrible for me and I was very addicted to them until 2009.
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Old 11-08-2017, 10:13 AM   #6
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I don’t know what silent means, but I did have a fairly large goiter when dx’d. I believe I’ve had benign nodules. I tried Armour once but felt horrible on it. Synthetic works well for me.
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Old 11-08-2017, 02:21 PM   #7
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Synthetic also works well for me. I started on 50 mcg of Synthroid, switched to Levoxyl because it's cheaper, still on 50 mcg. Good for you on taking charge of your health.
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Old 11-08-2017, 06:39 PM   #8
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I googled "silent thyroiditis" out of curiosity.

Silent thyroiditis is swelling (inflammation) of the thyroid gland, in which the person alternates between hyperthyroidism and hypothyroidism.

Over the past 20 years I have been diagnosed with both overactive and underactive thyroid at separate times, but it goes back to normal by itself, which is what it says in the article I quoted above.

I also have type 2 diabetes and often wonder if the two are tied together somehow.
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Old 11-08-2017, 06:46 PM   #9
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I started hyper, then went hypo and stayed there. Never had any swelling of my thyroid. So, I have no clue. I think they are related, Carol, but not sure how. How helpful am I? ��

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Old 11-08-2017, 07:03 PM   #10
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I really don't mean to attempt to get medical information from a forum, but it does help to hear what others are experiencing. I should get it looked into more thoroughly but when I hear all the problems others have finding a doctor who is willing to work with them, it makes me wonder if it's really worth it, as long as I feel ok, most of the time.

They are both autoimmune, right? I also have psoriasis....another autoimmune.
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Old 11-08-2017, 07:12 PM   #11
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Type 1 Diabetes is autoimmune, but Type 2 is not.
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Old 11-09-2017, 07:03 AM   #12
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Oh, and type 1.5 LADA is autoimmune as well.
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Old 11-09-2017, 08:09 AM   #13
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Type 1 Diabetes is autoimmune, but Type 2 is not.
I would normally have agreed with you, because I feel that I developed type 2 diabetes by eating too many carbs, gaining a lot of weight, and being sedentary. I own that. But when googling is type 2 diabetes autoimmune I came up with several articles stating that studies show this to be possible. The articles were dated 2011 with nothing more recent, though. I always wondered about this because I know people who are much heavier than I am and do not have a healthy diet, and they have perfect blood sugar.

I have also read that diabetes, heart disease and psoriasis are all related. I developed all three around age 50, and that's also when my eating changed dramatically and I became less active.
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Old 11-09-2017, 08:25 AM   #14
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I would normally have agreed with you, because I feel that I developed type 2 diabetes by eating too many carbs, gaining a lot of weight, and being sedentary. I own that. But when googling is type 2 diabetes autoimmune I came up with several articles stating that studies show this to be possible. The articles were dated 2011 with nothing more recent, though. I always wondered about this because I know people who are much heavier than I am and do not have a healthy diet, and they have perfect blood sugar.

I have also read that diabetes, heart disease and psoriasis are all related. I developed all three around age 50, and that's also when my eating changed dramatically and I became less active.
Interesting, I've never read about Type 2 being autoimmune. I also know people who are sedentary, overweight and do not eat well and they have no sugar issues. My understanding is that the deciding factor is genetics. I have exercised my entire life, have eaten relatively healthy, weigh 105 lbs, yet I struggle with blood sugar issues. I have a grandmother and a brother with Type 2; I believe it is genetics. BTW, I am the only one in my family with autoimmune thyroid issues, brought on at menopause. A lot of things can happen at menopause; the loss of estrogen seems to flip a switch to off that used to be protective.
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Old 11-09-2017, 09:36 AM   #15
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For years I thought no one in my family ever had diabetes but then I found out that a half-sister that I rarely saw (same father) had type 2, and so did her son. Both were overweight. Both have since passed on. I only considered my mother's family since they are the ones I knew well. After I married DH I gradually started to follow his eating habits and that is what did me in. He eats lots of sweets and carbs but never had a weight problem or sugar problem. I feel that it was 100% my own doing. I have greatly changed my diet but not satisfactory results.
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Old 11-09-2017, 06:09 PM   #16
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It isn't your own doing. If you're genetically programmed for diabetes your body will eventually have a problem processing carbs regardless of how you eat. Yes, you may have sped it up with your diet, but it wasn't your fault. In my case, I believe my healthier eating and consistent exercise has been prolonging my not quite high enough readings to be considered diabetes. But I fear it's happening now, when it probably would have happened years ago had I lived less healthy lifestyle. Hope I'm making sense.
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Old 11-10-2017, 12:55 PM   #17
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I hope you are able to keep it under control, Ronnie.
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Old 11-10-2017, 01:02 PM   #18
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I hope you are able to keep it under control, Ronnie.
Thanks, Carol, to you too!
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Old 11-12-2017, 12:20 PM   #19
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Diabetes Type LADA (1.5)

Had gone on this area and didn't see comments for quite a while -- but now see there are some nice comments!

Figuring out what type I am is quite complicated am finding out, tho for many years was 'diagnosed' as a Type 2. Here of late, at an endo's office it was mentioned I 'might' be a type 1.5 (LADA) instead and that this requires super-low carbing plus taking insulin...which my Nurse Practitioner has me doing for the past few weeks. All I have to do is 'look' at a food that has carbs and my blood sugar goes up.

However getting in to see an actual 'doctor' around here is mission impossible...won't be until sometime in March that I actually get to see an endo. in person. (One w/this office I'm 'assigned to' saw me in the hospital briefly when I was in for the first time ever (in October) with a serious problem -- she pops in my hospital room and said she was going to put me on Januvia along w/Met, then leaves again. Maybe it's a good thing I didn't get an appointment with her after all as do NOT want Januvia. (And Met doesn't do all that well to lower my blood sugar.)

Have asked the NP a couple of times whether the ones at this endo's office can even help me with what I have and she assured me they can. Interesting...as it's been weeks that they're fooling around trying to find out WHAT I have. Monday was my first blood work for the endo's NP ...that shows how slow this is going. Is it 1.5 (LADA) or something else, that is the question.

Ferritin/iron being high was something that a nutritionist had told me a long time ago was something I seemed to have; the NP told me on Monday that she will be 'fought' on getting me this particular type of test though. (and Still have yet to find out what the results of this past Monday's blood work reveals...)

Hence my question in the original posting.
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Old 11-12-2017, 12:47 PM   #20
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Sorry you've had so many problems dealing with this issue, Anne. I'm somewhat confused....have you been tested for the GAD antibodies? If high, I believe that would definitely diagnose LADA. I have heard that some Type 1's are also on Metformin, not necessarily to lower their blood sugar, but if they're also insulin resistant, Metformin helps to make their bodies more sensitive to insulin so they wouldn't require as much. I know it's hard to get an appointment with an endo, but I didn't realize it took that long. Please keep us posted and good luck to you!
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Old 11-13-2017, 08:29 PM   #21
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Now what?

OK, even more Today a gal from the endo's office called to tell me my test results were good, everything was ok (huh?) I'm taking 15u of Triseba at night, then my blood sugar readings are usually from around 115 early a.m. and go up to around 160 during the day (2 hours after eating); this is eating around 35-40 carbs a day -- and nothing shows up as a problem? interesting), and she said that I have Type 2 Diabetes. GAD-65 was ok, C-Peptide was no problem.

Mentioned to her that the NP had been telling me I MIGHT not even have Type 2, but something else, probably 1.5. The gal who had my file in front of her while on the phone w/me looked in it, said she saw nothing written down about Type 1.5 at all. My husband was actually in with me when this was told to me this past Monday. Nope, she says, it's Type 2. (Not that I'm complaining mind you if it IS Type 2 instead of the 1.5, but wondering why the Type 1.5 was even mentioned to me more than a couple of times as 'probably' what I have.) Then asked for the NP to call me to find out what I now have to do regarding eating low carb, am I still to take insulin shots? how many carbs to have? etc. ... waited, no call back to me all afternoon.

My husband says he remembers there was mention made of my being Type 1.5, so I wasn't hearing things. ha She had also mentioned that my pancreas could be 'atrophied.' The gal on the phone today said, 'not that I think you're lying, but I can't find anything at all in your records about 1.5.' We'll see if I get a call back tomorrow. Not thrilled with all this, that's for sure. I 'blew it' the other night, had 3 smaller pieces of potato and my meter reading went up to over 200 again. Then this gal on the phone reminded me I have an appointment with the actual endo. doctor in March. (as good as it gets)

Tomorrow I have an appointment with an NP who will be my new GP ... he is more into nutrition than most other doctors are in this area so will see if he can help me get better on track. The specialists' NP's that I've dealt with here so far don't seem to get involved with nutritional issues all that much. In fact, the NP for the heart specialist even took me OFF potassium pills a few days ago, saying I'm already in a high range for that nutrient. Huh?

Have been taking Potassium for a few weeks now from my release from the hospital back mid-October, and it wasn't until I had blood work for that heart NP most recently and come to find out I don't even need potassium. (Am also on a 'water pill' for water retention and realize that this pill usually flushes out potassium and serious problems can result from that.) But, again not complaining about one less pill to take either just wondering about why I was told to take it all along since I got out of the hospital. Maybe a blood test that was done for me in the hospital showed Potassium to be low.
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Old 11-14-2017, 08:23 AM   #22
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I would, I do, always ask for copies of lab work so I can see for myself and track my health. One of my sisters was told that she probably was always a latent type 1. She was diagnosed a type 2 over 40 years ago and meds didn’t work for her, only insulin so within a year she was on insulin. She has since developed other autoimmune issues. All these things point to her probably having autoimmune diabetes but since her treatment is the same either way, no one sees a reason to test her now.

For our own peace of mind it’s nice to know....we can track research going on in our particular health issues.

Anyway, if you are having problems and remain on insulin for control, I see a book called Thinking Like a Pancreas being much touted by diabetics as very helpful with proper dosing for carbs and the other macronutrients. Diabetes has to be very hands on by patients because doctors can’t be with us for all the variables involved and individual bodies can be so different. Dr Richard Bernstein’s book on Diabetes too, clarifies so much!
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Old 11-14-2017, 12:42 PM   #23
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Anne, I think if your GAD test came back normal, you are not LADA. That's just my opinion. I don't have any medical knowledge. If someone mentioned that you might be 1.5, they were just guessing if they didn't have test results to go by. I would go according to the person who has the test results.

I have been on water pills off and on for my heart, and if I they are prescribed daily, I am also prescribed Potassium automatically. If I just need it for occasional water retention I don't need to take the Potassium.
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Old 11-14-2017, 01:05 PM   #24
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I do agree with Carol about the LADA. Are you younger than menopausal age? If you are, they may be why LADA was first mentioned to you. I assume they tested your fasting insulin? If that's high it does point to Type 2 and insulin resistance. Obviously, something is going on...hopefully the endo will sort it out for you.
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Old 11-14-2017, 09:45 PM   #25
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Type 2 now, not Type 1.5

Wanted to thank those who gave such nice responses! The NP from the endo's office called this a.m. and she stated it's Type 2 a couple of times, she also said that the dietitian she had me also talk to re low carb menu, etc., should not have mentioned the 1.5 to me (but this NP did as well to me ha) still wants me on Tresiba at night. She has also now added Met500 as my sugar wasn't regulating that great (as in when I asked, the heart NP is going to want me at 100 for my meter reading. This may be because of healing problems because am facing a major surgery soon. Long story.)

Then this afternoon went to my new GP who is really concerned about my potassium pills stopped (since I'm on a daily water pill). He's going to have me checked for that and electrolytes this coming week in blood work. He checked me out pretty thoroughly as compared to the other medical places have been to already.

He also changed me from Lisinopril (sp?) over to another med because of coughing have been experiencing. This other med is supposed to be as good but doesn't cause coughing. Didn't know at first but this wasn't a 'heart cough' but is a side effect caused by the Lisinopril. Why not, right?

The GP has scheduled me to see a vascular doctor soon as he wants to get to the bottom of what's going on w/ all the water retention (7 liters had to be removed from me back in Oct., fortunately was told no cancer was found in that. whew!)

This GP is more concerned, again, with nutrition, than just in handing out meds. Was glad to hear my BP was doing good today as that was a concern when I was in the hosp as well as by the heart NP (hopefully this new med I'll be on starting tomorrow will keep it that way). All these doctors, it's getting difficult for me to keep up with all of them...on Mon I go for a second opinion for the upcoming surgery so that will mean even more fun.

Told my husband tonight that he'd better have something sugar-y ready for me in case I go way too low while sleeping (as took my first Met(500) tonight and then will have a Tresiba shot in a little while. Today the endo NP said that I should take Met500 during my largest meal, for a week, then she would up it to 1000 depending on how things go for me. Ironically and oddly, my glucose reading was quite good this morning (it fluctuates, but had been around 130-140 fasting for a while, on occasion lower, lowest a couple wks ago scared me at around 80, and that was w/o Met), but realize today's good readings were 'flukes.'

Monday's second opinion from an ob-gyn onc. surgeon is going to be scary because of all the complications going on. The heart specialist I've yet to see in person, mind you; he might not even 'okay' this surgery since my heart is working at only 40 percent. The GP is going to access all my medical records and see what's all going on in that regard as well. (Another ob-gyn onc. surgeon told me I have to have this major surgery, and a.s.a.p. However, getting to talk to this other doc for a second opinion, there's no way it'll be a.s.a.p. as we were told it has to be done. So far we're (both) hanging on despite what's going on.

Might not be on this area for quite a while depending on what happens so please bear with me.
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Old 11-15-2017, 07:38 AM   #26
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Anne, I'm so sorry for all the medical issues you are experiencing. It does sound like your medical team is staying on top of things....I do hope they are all communicating with each other. You are correct that the Lisinopril can cause a cough...it's an ACE Inhibitor and cough is the number one side effect. I'm thinking your doctor switched you to an ARB which works like an ACE without the cough. I wish you the best of luck and send positive thoughts your way for improving health. Please keep us posted on how you're doing.
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Old 11-15-2017, 07:48 AM   #27
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I echo all that Ronnie said and want to add that the Metformin helps control blood sugar, but does not actually lower it the way the Tresiba does.
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Old 11-15-2017, 08:23 AM   #28
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Iím glad you are being totally evaluated Anne. It does sound like your docs are staying on top of your situation. All the best in your upcoming treatments. Please let us know how you are doing when you can!
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